Effectiveness of Family Education in Thalassemia Screening Awareness: A Literature Review

Abstract

Thalassemia is a hereditary disease caused by the failure to form one of the four amino chains that form hemoglobin. The diagnosis of thalassemia carriage in extended family members serves as a significant prevention measure for those at increased genetic risk. Screening for thalassemia carriers by targeting Thaler major large families can produce more cases of thalassemia carriers in an effort to reduce births with thalassemia. The study aimed to systematically examine family educational interventions in thalassemia screening. This systematic review was carried out using the PRISMA 2020 checklist. This research used databases like PubMed, Cochrane Library, Springer Link, and Base. The inclusion criteria were English-language articles with cross sectional, case-control,and cohort designs published in the last 10 years (2013-2023). The research found that twenty studies met the inclusion criteria. Keywords used were awareness, thalassemia screening, extended family, and education. The results of the review showed that the majority of the research results described screening for thalassemia as a straightforward method in the preventative effort. Health education will increase
awareness and consideration of screening for the prevention and control of severe thalassemia. It requires a comprehensive approach in which community education and promotional activities are tailored to local cultural and religious beliefs.